Video Media We Recommend
Clinical Resources for Health Professionals and People with ME
Accelerating Research on ME/CFS Recordings of the two day meeting hosted by National Institutes of Health in Bethesda, Maryland, USA. (4-5 April 2019)
ME/CFS International Research Symposium: The Biomedical Basis, Diagnosis,Treatment and Management Recordings of the symposium hosted by Emerge in Geelong, Victoria, Australia. (12-15 March 2019)
UNREST award winning documentary (1hr 38min) on Netflix, For more info and trailer go here. Documents the story of Jennifer Brea and others of what ME/CFS looks like behind the scenes (i.e not in a Dr’s office) and a history of the disease including contributions from Dr Nancy Klimas and Dr Ron Davis.
Voices from the shadows Another moving documentary about severe ME. See link. Please note this film is not suitable for children and young people with ME, who may be distressed by viewing it. It is intended to educate those who are not familiar with the illness and the issues surrounding it.
3. Clinical Guidance
#ME Action CME Youtube video by Dr David Kaufman talking about diagnosis and management of ME and CFS.
CME* activity on Medscape Feb 2019 that doctors can complete to learn more about ME/CFS Diagnosing Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Experts Weigh In. Authors: Lucinda Bateman, MD; Natalie Azar, MD; Nancy Klimas, MD; José Montoya, MD. (*CME - Continuing Medical Education)
When watching the Medscape CME above, please be aware that;
PEM (Post-Exertional Malaise) is a core symptom that needs to be well understood. Cardio-Pulmonary Exercise Testing (CPET) shows reduced work output at ventilatory threshold 24 hours after exertion. PEM is delayed, and may be triggered for some with ME by having a short conversation.
A person with ME may have reduced their activity to ensure they don’t experience PEM - this is desirable. However, this will mean that the PEM symptom is not recorded as occurring 50% of the time, as suggested in the charts.